Centers with Expertise

Cardinal Glennon Children's Medical Center, Saint Louis University

1465 S Grand Blvd , St Louis , MO 63104

https://www.ssmhealth.com/cardinal-glennon

Points of Contact

Dhiren Patel MD

314-577-5647

dhiren.patel@health.slu.edu

Karen Weaver, MSRD CNSC

314-577-5647

karen.weaver@ssmhealth.com

Susan Brodlie, MSRD, CNSC

Points of Contact

Susan Brodlie, MSRD, CNSC

917-494-2844

soozzclues@gmail.com

The Children's Hospital of Philadelphia

3401 Civic Center Blvd, Philadelphia, PA 19104

http://www.chop.edu/

CHOP has a congenital diarrhea panel that includes DGAT1.

Points of Contact

Natalie Terry M.D., Ph.D.

267-426-7223

terryn@email.chop.edu

Edmond and Lily Safra Children's Hospital, Sheba Medical Center

Tel-Hashomer, Ramat - Gan, Israel

https://www.sheba.co.il/

Points of Contact

Dr. Batia Weiss

03-53028468, 03-5305006

weissb@sheba.health.gov.il

Dr. Yael Haberman

972-54-4301319

Yael.haberman@sheba.health.gov.il

Brigitte Kochavi , RD CR

brigitte.kochavi@sheba.health.gov.il

Monroe Carell, Jr. Children's Hospital at Vanderbilt

2200 Children's Way, Nashville, TN 37232

https://www.childrenshospital.vanderbilt.org/

Points of Contact

Kelly Fair Thomsen, MD, MSCI, CNSC

615-322-7449

kelly.thomsen@vanderbilt.edu

Allison Norton, MD, FAAAI

615-936-5697

allison.norton@vanderbilt.edu

Martha Ballew, M.Ed, RD, CNSC, LDN

615-322-7449

martha.ballew@vanderbilt.edu

Ludwig Boltzmann Institute for Rare and Undiagnosed Diseases

Lazarettgasse 14, AKH BT 25.3, c/o CeMM Research Building, Main Entrance level 1, 1090 Vienna, Austria

http://rud.lbg.ac.at/

Points of Contact

Dr. Kaan Boztug

+43-1/40160-70 069

Kaan.Boztug@rud.lbg.ac.at

Columbia University Medical Center, Center for Children's Digestive Health

3959 Broadway, New York, NY 10032

https://www.columbiadoctors.org/childrens-health/digestive-liver-disorders

Points of Contact

Joseph Picoraro, MD

212-305-5903

jp3386@cumc.columbia.edu

Sivan Kinberg, MD

212-305-5903

sk1312@cumc.columbia.edu

Boston Children's Hospital

300 Longwood Avenue, Boston, MA 02114

http://www.childrenshospital.org/

Points of Contact

Daniel Kamin, MD

617-355-4677

Nina Gluchowski, MD

617-355-4677

Wendy Elverson, RD, LDN

617-355-4677

wendy.elverson@childrens.harvard.edu

University of Michigan, C.S.Mott Children's Hospital

1540 E Hospital Dr, Ann Arbor, MI 48109

http://www.mottchildren.org/

Points of Contact

Lola Rosewig, RD

734-232-6825

Dana Steien, MD

734-763-9650

Regenerative Medicine Utrecht

Heidelberglaan 100, 3584 CX Utrecht, Netherlands

https://rmutrecht.org/

Points of Contact

Sabine Middendorp, PhD

+31302121800

s.middendorp@umcutrecht.nl

Massachusetts General Hospital for Children, Pediatric GI Division

175 Cambridge Street, CRPZ 5-560, Boston, MA 02114

http://www.massgeneral.org/children/services/treatmentprograms.aspx?id=1639

Points of Contact

Lauren Fiechtner, MD

617-726-8705

Harland Winter, MD

617-724-2004

hwinter@mgh.harvard.edu

Hadassah University Hospital

Jerusalem, Israel

http://www.hadassah.org.il/

Points of Contact

Peri Millman, MD, Pediatric Gastroenterology

02-584-5039

pnmillman@gmail.com

Professor Michael Wilschanski, MD Pediatric Gastroenterology

02-584-5039

michaelwil@hadassah.org.il

Montreal Children's Hospital, Division of Pediatric Gastroenterology and Nutrition

B04.2443, 1001 Blvd Decarie, Montreal, QC, Canada H4A 3J1

https://www.thechildren.com/departments-and-staff/departments/department-of-gastroenterology-division-gastroenterology-and-5

Points of Contact

Veronique Morinville, MD

514-412-4474

veronique.morinville@mcgill.ca

Santa Casa de Misericordia de Sao Paulo

Sao Paulo, Brazil

http://www.santacasasp.org.br/

Points of Contact

Mauro Toporovski, MD, Pediatric Gastroenterology

55 11 99930-2812

toporovski@uol.com.br

Kaplan Medical Center

Rehovot, 76100, Israel

http://www.clalit-global.co.il/en/

Points of Contact

Dr. Chani – Topf-Olivestone

08-9441255

Chanito@clalit.org.il

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