"He was unable to gain weight as soon as he was born and was originally put on an NG tube and after three months was put on a G-tube after endoscopies showed no damage to his GI tract. At 5 months, after still failing to gain weight, and with chronic diarrhea and chronic reflux since birth, he was fitted with a Broviac and received TPN until age 15 months. He continuously contracted CLABSI infections and his Broviac line broke every few weeks and new ones were continuously implanted in him. During this time, a genome test on him, my wife and me revealed the mutation of the DGAT 1 gene. He was started on Tolerex formula, the Broviac was removed, and walnut oil was given to supplement his fat."
"Before our daughter started proper treatment, she failed to thrive. When we tried feeding her it would work only for the first few days or week. The first symptom was always diarrhea, then she would start to vomit and lose weight and would eventually get dehydrated. She basically survived her first 6 months on TPN and lipids."